Trexo Robotics Gait Trainer Sponsor
US$0.00
We want to give the invaluable gift and experience of walking to a child like Karter! Our goal is to raise enough funds to gift one child/family their very own Trexo Robic Gait Training System by the end of this year. This is no small feat. We need your support! See our below for more information about it's benefits, and how Karter has used this amazing technology!
You may also send checks to:
KourageousKarter Foundation
PO Box 184
Hugo, MN 55038
Meet our First Ever Trexo Scholarship Recipient!
Alex is selected as our recipient!
We awarded our first official scholarship to Alex, a 3 year-old little boy diagnosed with lissencephaly.
A little about Alex's story....
Elizabeth, his mother, experienced a relatively easy pregnancy and birth with Alex. In her words....
"Aside from a very minor heart murmur, his newborn stage was peppered with so much calm that we always joked he was going to wait until his teen years to give us any troubles. What we didn’t realize is that Alex was not intentionally being “easy”, his brain was getting bombarded by what we now know were seizures. We
weren’t aware that there were multiple types of seizures, so when Alex was
having Infantile Spasms as a newborn, we chalked it up to normal infant
behaviors.
At 3 months old, we couldn’t shake this feeling that something didn’t seem right. We tried hard not to compare our two babies, but when Alex wasn’t holding his head up, we were concerned.
Alex had a tonic clonic seizure, stopped breathing, turned blue, and was rushed to hospital. Our pediatrician was wrong; Alex was not healthy. After several invasive tests on his little body, we got a diagnosis of Lissencephaly. That means that Alex’s entire brain is smooth, there are no groves or ridges and there was very little development in the womb. He has also been diagnosed with
epilepsy, cortical visual impairment, cerebral palsy, autism, oropharyngeal
dysphagia, hearing impairment, amblyopia and double cataracts.
Alex just turned 3 in November. He just started preschool and has made
so many curious friends already. He is Mr. Athletic and can give you a good
shiner with the flick of one toy. He absolutely loves balls, his two favorite being soccer balls and yoga balls; and enjoys the sounds of slamming doors which is always so comical. He tries to smile to get out of anything, especially hard therapy. He is doted on by his big sister but can also be an annoying little
brother and pull hair like the best. He is joy in the tiniest body and that is about
the best statement we could use to describe him."
Raising Money for "Robot Legs!"
Every child deserves the opportunity to experience something as basic as walking. For kids like Karter, the Trexo Robotics technology allows them to feel what it's like to walk on their own with a typical gait pattern. In other words, it helps their bodies walk the way they are supposed to! Besides the experience of walking, we (and other parents) have noted improvements including: better head control, improved trunk control, neuromuscular health, and for Karter, more energy! To see Karter's body upright "walking" side-by-side his siblings is the intangible benefit science can't measure. For us, the experience is invaluable. We can't put a pricetag on it.
All Kids Deserve This, But It's Costly
Although we can't put a pricetag on this, in reality it has a hefty one. When your child has medical complexities and the need for adaptive equipment, the cost of living is extreme. This technology is new, and not yet covered by insurance. Families like ours battle insurance companies all the time for essential equipment. Right now, the Trexo is considered a "luxury" item so many families can't afford. And some don't have the capacity required to fundraise for such an item. Walking shouldn't be considered a luxury or privilege. It is a basic experience every child deserves. That's where we come in! And we need your help!
Help us Raise Funds
We are calling on all KourageousKarter supporters to help with our mission. We want to raise money so we can give the gift and experience of walking. Our mission is to get at least one family one Trexo by the end of this year. That is our goal! The more money we raise, the more Trexos we can purchase. It's time to roll up our sleeves and get to work. Please help us accomplish this mission!
