Our latest mission project landed us on GMA!
KPSTP showcases Karter's use of the Trexo and our mission to help other families
Billy Price is founder of Billy Footwear, an inclusive shoe company . After a devastating, 3 story fall, Billy was left paralyzed from the neck down. He was left with mobility challenges, as well as difficulty completing everyday tasks- including putting on his shoes. Billy took the time to learn more about our story, our foundation, and why this mission is so important through this Open Book platform. We are so proud to be an associative partner! He is a kind, kourageous, resilient person!
What is Ableism? Ableism refers to a bias or prejudice against disabled people. It hinges on the idea that able-bodied people are more valuable, superior than persons with disabilities. Nobody wants to be "abelist," but there are lots of subtle ways our we have been influenced to view the world through this lens.
It's the idea that disability is inherently wrong and needs "fixing." It's trying to "cure" disability rather than accept it as a common part of human experience. It's telling people to "beat the odds," like their disability is something they should overcome. It's thinking a person in a wheelchair is "inspirational" just for existing. It's assuming disabled people need to be rescued or are weaker.
It's complicated. We all have ableist views and tendencies to unpack. But it starts with acknowledging its existing and having open conversations to be better.
In this 9 minute speech, I share a bit about our story and the importance of pediatric hospice and respite services.
In order to raise awareness for Cerebral Palsy Day (March 25), I shared our journey with helping Karter find his voice through use of an AAC device.
Karter's experience with Freedom Concept's products was featured here. He LOVES his custom, adaptive bike! His Chill-Out-Chair is supportive seat that is kid-friendly and "cool." Read about them here!
The CitizenPress of Hugo featured our family, told our story, and explained the purpose behind our foundation.
The Star Tribune did a series chronicling the inconsistencies and challenges the current waiver system creates. The author(s) captures the struggle and ramifications for families in a very accurate, authentic way. Karter's story was featured as one of many who were not accurately assessed, and how it affected our journey.
Originally from small-town Iowa, I graduated from Simpson College (Indianola, IA) with a BA in Psychology. From there, I moved to Cedar Falls, IA and obtained my Masters in Education as well as my Education Specialist Degree through the School Psychology program at the University of Northern Iowa. After 3 years of working as a school psychologist, I met my husband and moved to Minnesota. Eventually my career transitioned to educational leadership roles within the special education realm. Right before Karter was born I completed by K-12 Principal and Special Education Director license. Throughout this time I continued to enjoy playing volleyball, teaching kickboxing, and became a mother to our beautiful daughter, Maddie. When I wasn’t working, I was enjoying all of those aspects of my life. Everything was going exactly as I had always hoped. Until it didn’t. Ironically the career path that I so clearly saw for myself ended shortly after it began.
Karter’s birth forever changed me in so many ways. Truly, I didn’t know what to do or how to get out from the dark trenches I found myself buried in. I feared for his life, my marriage, my daughter, and our family‘s future. I felt lost. Grief-stricken. Anxiety ridden. It was incredibly difficult. Slowly but surely, I began to pick up the pieces. I found my footing. Yes- my life took a hard, unforeseen turn. But eventually, I started moving again. It just was on a completely different road than I envisioned for my life.
I still don’t always know where I’m going, or if it’s the right direction. And it’s a rocky road. But as a former special education professional turned stay-at-home-medical-mom, I have realized I have a unique perspective, experiences, and skill-set. There are so many gaps in the medical, educational, and state programs people like me rely upon to do this life. I want to put my skills and experiences to use, and create bridges to make it easier for families like ours. The only way I know how to accomplish this is to share what I’ve learned.
My hope is that sharing our journey will not only be therapeutic for myself, but can help others in the process. I am humbled and grateful you would take the time out of your life to learn from mine.