The Rare Life Podcast
Madeline Cheney provides real, honest, raw topics regarding parenting a child with medical complexities. Her son Kimball and her journey since his arrival inspired the show. Episodes consist of her experiences in special needs parenting, parent guests sharing their stories, and education provided by professionals. Visit the website or any streaming app to tune in!
For Our Special Kids
" For Our Special Kids is a podcast for parents, caregivers, family, and friends living a life that only few understand, walking a path that few journey down, and loving a child that few will see with pure joy."
The podcast host, Jen, created this podcast inspired by her parenting journey with her daughter, Teal. Shortly after Teal was born, she was given a diagnosis that changed everything.
Jen invites guests from all different experiences to share their journeys, helping us all to learn and grow.
1 of 20 Podcast
Jonathan Cappiello was diagnosed with a rare genetic disorder that only 20 people in the world have. The condition is called 3 hydroxyacyl coa synthase deficiency, which in short compromises his immune system and his body cannot process fats. Each week, he will discuss his lifestyle, his diet, and how he adapted to his condition. Additionally, he has a variety of guests to talk about their conditions. If you’re interested in genetics, rare disorders, medicine, and healthy living-- this is the podcast for you!
Listen on Spotify or Apple Podcasts!
Coffee with Caregivers
From her podcast: "Join Jess Ronne, author, speaker, and caregiver advocate as she chats with caregivers about the joys and trials of raising a child with complex needs. Jess is also the founder and executive director of The Lucas Project—a non-profit which provides recognition, resources, and respite for special needs families. She and her husband Ryan live in Tennessee with their 8 children, including their son Lucas who has profound special needs. Her story of beauty from ashes is detailed in her memoir Sunlight Burning at Midnight".
Listen on apple podcasts or spotify!
To follow the ongoing saga she can be found at www.jessplusthemess.com