Mental health is crucial to sustaining your capacity to be the caregiver, parent, friend, family member, etc. But the old saying "take care of yourself" seems impossible when your child has medical complexities and disabilities. Many of us struggle with anxiety, trauma responses, and even depression.
Amanda Griffith-Atkins is a licensed marriage and family therapist and founder of Amanda Atkins Counseling Group in Lincoln Square, Chicago.
Amanda earned a Master’s degree in Marriage and Family Therapy from Northwestern University, but it wasn’t until her son was diagnosed with a rare genetic condition that she discovered her life’s purpose: to help parents of disabled children find their stride.
Her website features a therapist directory by state that lists licensed professionals who have expertise in helping parents with disabilities navigate their grief.
Check out her website to learn more and follow on social media!
"The film follows Jess and Ryan Ronne, a blended family with 8 children, including Lucas, who has profound disabilities requiring total care. Their situation has gotten more and more challenging as Lucas gets older and stronger. With limited resources and support, caregiving takes a toll on their physical and mental health.
It’s a common story among parent caregivers: the isolation, uncertainty about the future, lack of options, and a never-ending daily to-do list means the role of caregiver overpowers nearly every other facet of life. Video diaries from diverse caregivers featured in the film illustrate this universality, while interviews with mental health experts and policy/legal advocates provide a broader view on the societal impacts.
Through the power of unfiltered, compelling human stories, Unseen cultivates compassion and tangible support for the caregivers in our communities.
This documentary aims to give glimpses into the real life challenges faced by real families, bring light to how difficult it can be to secure the resources and supports families need, and to form partnerships to create change.
Caregiverdoc.com has entire page dedicated to caregivers, and giving them more tools and resources for support and connection.
"Our mission is to support a national network of Parent to Parent programs to ensure access to quality emotional support for families of individuals with disabilities and/or special health care needs."
" Parent to Parent USA will support a network of viable, sustainable, fully-functioning and effective Parent to Parent programs in all 50 states through hands-on support, training and technical assistance, and high quality tools and resources. Our network’s parent leadership and engaged membership will serve as strong advocates, provide robust mentoring opportunities, and develop the working partnerships with funders, service providers, and others needed to sustain and grow the program nationwide. "
If you have new resources or would like to be featured, please share. We'd love to add relevant content!