While part of our goal is to raise money for causes that directly benefits families like ours, our foundation also aims to be a resource. We hope this website has a little something for everyone. Want direct info to relevant topics or links to helpful organizations? Our resources page has you covered. Find blogs helpful? We have that, too. Want to learn about our family, and how we tackle this life? You're in the right place. But if you feel the need to take action and help, donating to our foundation will be a great way to support our mission.
There is much to see here, so take your time! And drop us a line if it's on your heart to do so! We appreciate you being here.
To make life better for medically complex kids and the people who love them.
Kourage: Strength in the face of grief or pain.
By definition courage means "strength in the face of grief or pain." Karter's life and our story is the epitome of this word, as we live with grief and gratitude every day. We hope to use this page to inform, educate, connect, and support people on all aspects of what life is like raising him.
While we’ve learned a great deal through our experiences, we are not licensed medical doctors or attorneys. Although we have a PhD in being parents to a child with a severe brain injury, nothing on this site should take the place of your own medical team’s advice. Likewise, if you have specific questions about disability law, contact an attorney.
We are also only 6 years into this journey. We certainly have a LOT to learn and a ways to go! By no means do we “know it all.” Everyday teaches us something new. We plan to update, edit, and add to our website along the way. We HAVE, however, learned a TON that we wish we would’ve known from the start. If we can help other parents learn from our experiences, then we have served our purpose.
Our site exists simply as a platform for quick resources, connection, and support. Please keep that in mind!
When Karter was on hospice, our small-town Iowa communities rallied around us and hosted fundraisers for our family. Because of the uncertainty of his prognosis, I took a leave of absence from my career, leaving us down to one income. At that time, we had no medical assistance or resources, so the fundraisers saved us that first year. Besides the tremendous financial contributions, the fact that so many gathered together in support of our family during our most difficult time was humbling, moving, and something that left a GREAT impact. We will never forget how that made us feel. We knew someday we wanted to pay it forward and give back. Truly, we feel responsible and called to do our part to make things better for families like ours. We want to use our skills, resources, and passion for helping others to make a difference.